The Lizzie Velasquez story

'My story is everyone's story': 26-year-old with rare genetic disorder who was once labeled the 'world's ugliest woman' insists she's better off thanks to cruel bullies 

  • Lizzie Velasquez was born with a rare syndrome that gives her an aged appearance and makes it hard for the 63lb woman to gain weight
  • When she was 17, someone posted a video of her online and strangers made awful comments, telling her to kill herself
  • Since then, the Texas resident has made a career as a motivational speaker, giving a TED talk that earned over eight million views
  • A new documentary about her life, A Brave Heart, premieres in September

A 26-year-old who was once labeled the ‘ugliest woman in the world’ insists that she is actually thankful for the online bullies who cruelly tormented her about her appearance, because they helped her get to the great place she's in today. 
Lizzie Velasquez was born with neonatal progeroid syndrome, a rare genetic disorder that gives her an aged appearance. It affects her face, muscle tone, brain, heart, eyes, and bones, and also prevents her from gaining weight - meaning that at 5'2", the Austin, Texas, resident is just 63lbs.

Lizzie didn't know she was different until her first day of kindergarten, when her classmates shrunk away from her. The other kids seemed afraid of her appearance and would often point and refuse to sit with her - even though she wasn't doing anything wrong.
'It was a big slap of reality for a five-year-old,' she said.
Her parents told her that she was just smaller than the other kids, but she was beautiful and could accomplish anything.
With a loving family to back her up, things started to improve a bit as she got older. She made an effort to remain positive, and even joined after-school activities to make friends. She was on the school paper and the cheerleading team, and as she put herself out there, her life got better.
Until one day, when everything changed. Lizzie was still in high school, looking for music on YouTube when she stumbled across a video of herself. In the comments section, anonymous strangers said terrible things, labeling her the ‘ugliest woman in the world’ and slinging hurtful insults. They called her a monster, said someone should 'kill it' - meaning her - 'with fire', and asked why her parents didn't abort her.

And though she knew that the kinds of people who would write such awful things are the lowest of the low, that didn’t stop their comments from hurting Lizzie - especially because each and every one of them was negative. 
'I read every single comment thinking there would be one person to stand up for me. Not one person said, "She's a child, leave her alone," or "You don't know her story, why she looks like that,"' Lizzie recalled. 'I felt like someone was putting a fist through the computer screen and physically punching me. I bawled my eyes out.'

ut while most people would have trouble recovering from such a heart-wrenching experience, Lizzie is not most people. In fact, she now says that she would like to thank the person who first labeled her the 'ugliest woman in the world, because he or she changed Lizzie's life.
Perhaps because she had already overcome so much adversity, the young woman was able to turn that cruelness into something good. Since then, she went on to college, wrote a book, and became a motivational speaker and anti-bullying activist - which was most famously seen in her widely-watched in Austin that has been watched over eight million times to date. 
'Even though things are hard, I can't let that define me,' she said on the TED stage. 'My life was put into my hands just like your life was put into yours. You were put in the front seat of the car. You are the one who decides if your car goes down a bad path or a good path. You are the one that decided what defines you.'
Those encouraging words clearly struck a chord with many people. Lizzie explained to Today: 'I'm not sure what it was about the TED talk and what I said in it, but it changed everything.' 

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